Sometimes I need inspiration. I’ve been in a bit of a slump the past few months. I get worn down by the grind of everyday life and I need to recharge. When this happens, I step back and take a look at the bigger picture. Sometimes we get lost in the details and need a […]
Building strength, stamina, and endurance is not easy. I mean, for someone like me with a neurodegenerative disease or a movement disorder, there can be some challenges. I definitely have had some challenges around endurance, but that’s mostly due to motivation and maybe self-efficacy. The best thing to do I’ve found is to take things […]
Getting diagnosed with an incurable disease was undoubtedly the best thing that ever happened to me. That sounds like a pretty preposterous idea – at first glance. If you or anyone you love has been diagnosed with an incurable disease or life-threatening illness, you may know that it is a very stressful time. All sorts […]
Although my disease is said to be incurable, I wonder why I should waste my time and energy on worrying about a cure. I’ve seen some with my disease and other such illnesses pour a lot of energy into looking for the latest news, going to events and actively bringing awareness on their respective diseases. […]
I used to think the disease I have (ARCA1) is a curse. Some days are better than others. Many physical things that I used to take for granted can be a challenge at times. Right now, most of it revolves around walking, balance and coordination. In the past few weeks and months, however, I have […]